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Questions or thoughts
that have come to mind when thinking about children and hypermobility,
but firstly what is hypermobility?
Hypermobility is simple
really have you heard about being double-jointed, namely the individual
is able to bend in a manner of different ways, but some people think
this is an asset, but we know different, We know that this will
effect their internal organs and can be extremely painful.
You have to think through
the eyes of a child and then your battle is halfway over?
So what we mean here
what the able bodied child can do is of advantage to them, however
when a child is suffering from this condition here are some pointers
and areas for you to think about.
- Does your child feel
like a rag doll when you go to pick them up, but your child complains
of being in pain and gets frustrated, because they can't do anything?
- Your child gets annoyed
because they can't stand up properly, because they complain of
the feet going from under them, and they don't understand why
their feet are so floppy.
- Your child gets grumpy
and starts to cry because they are in pain and shows no interest
in people around them
What about life at
school?
- Does your child have
writing problems, have you noticed that they keep telling you
or you may have noticed that can't hold a pen?
- Have the child's
teacher commented that they think that they are being lazy or
showing sign of being clumsy, are they accused of slouching, because
one they cannot sit straight. No matter how many times they have
tried it is too painful.
- Children who have
this condition will tell you in their own way that they are unable
to take part in any form of physical education, because they will
let it be known the sports teacher is a bit of bully and refuses
to accept the fact that they have difficulties.
Facial expressions
These are a great indicator
of how a child feels when they have to deal with this painful condition?
Think each of these
child's faces is telling you and then think about the conditions
and the effect upon your child?
Then think of the following
statement: -
"I am different because
my joints bend the wrong way and there are many people who suffer
differently with this condition.
I have problems at school,
because some of the teachers think I am playing up and being awkward,
they think I am clumsy, I am not!
They don't understand,
they make me do things I can't do, because they don't believe me.
I can only do school
work for so long before I get very tired, and I have problems walking,
sitting, I have problems getting through to special teachers!
Don't judge me, Make
too many assumptions, and speak to me and not over my head".
- Children have a great
difficulty when it comes to doing up their laces. We know children
are into the latest fashions, but they put these items on with
some difficulty, but you will find that they will not be able
to undo the zips, buttons, etc this is because they do not have
the strength to be able to do the simple task.
- A child will also
complain when it is too hot and they will find it very difficult
to even walk, this is because they do not have the strength to
be able to perform this task and will start to moan and all they
want to do is to sleep.
- Has your child been
targeted as being known as being clumsy and they may have had
and eye co-ordination problems.
The solutions
- We can help you get
the best and refer you to some our contacts within the field and
within the organisation
- If you are having
problems we have an outreach centre in Colchester and for more
details contact Regional HQ on 01255 674982 or speak to our children's
advisor Karen Allen 01206 521283
"By working together
we can help each other to form the best form of care and treatment"
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