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A new campaign, "Family
Stress Points: Living with ADHD 24/7" is launched today to provide
support and advice for parents of children with Attention Deficit
Hyperactivity Disorder (ADHD) on coping with the most stressful
times of the day. The campaign has been developed with the support
of ADDISS (the National Attention Deficit Disorder Information and
Support Service) as well as Consultant Clinical Psychologist Dr
Tanya Byron, best known for the BBC TV series "Little Angels".
Research to support
the campaign reveals that parents of children with ADHD are looking
for more symptom control from current treatments, particularly at
the times of day when family life is most disrupted. Early mornings
and evenings are known to be the day's key stress points,¹
but there is a 'gap' of up to 27% between the levels of symptom
control doctors believe treatments are giving throughout the day
and the real-life experiences of parents.²
Key findings from the
research include:
- 85% of doctors expect
symptoms to be controlled from 8-9am, whereas 62% of parents agree
that this is the case²
- 60% of doctors expect
treatments to still be effective from 5-7pm, however just 45%
of parents feel that symptoms are under control at this time²
- Although most parents
and doctors agree that ADHD medication completely wears off between
7pm and 9pm, for a significant minority of parents (17%), symptom
relief has already ended by 5pm²
As treatment wears off,
the detrimental impact of the condition is magnified for crucial
times of the day, affecting both family life and social relationships.
- Over 90% of parents
believe their child's ADHD has a moderate or severe impact on
family life²
- 63% of respondents
feel that parents generally do not want their children to play
with a child with ADHD²
In this environment,
parents are looking for much more from treatments: 68% of parents
are looking for a treatment that provides 24-hour symptom relief
but only 1% believes that this is currently achievable.²
Dr David Coghill, Senior
Lecturer in Child and Adolescent Psychiatry at the University of
Dundee comments, "ADHD is a 24-hour condition and the busiest times
of the day for the family - mornings and evenings - can be the most
stressful for parents and children alike. As a result, we know that
affected children can miss out on friendships, after-school activities
and hobbies whilst family time is constantly disrupted. The daily
and constant chaos that ADHD can cause impacts not only on the development
of the child with the disorder, but also affects his or her siblings,
the wider family, school and community."
Dr Tanya Byron, who
specialises in child and adolescent mental health said: "Children
with ADHD and their families can work together to find practical
ways of managing their lives in order to minimise daily disruptions
and stresses and maximise quality loving and positive family time.
Information and advice for parents gives them the freedom to take
action which will benefit all their children and allow them to get
the most out of family life."
The new campaign provides
support and practical advice for parents on managing the most stressful
times of the day, with practical hints and tips and contact details
for organisations that can help. The information is available by
telephoning 01256 315999 or emailing your name and address to ADHD@familystresspoints.co.uk.
Andrea Bilbow, Chief
Executive of ADDISS added: "ADHD affects everybody in the family,
not just the diagnosed child and this is especially true at the
most stressful times of the day before medication takes effect and
after it has worn off. This campaign will hopefully raise awareness
of the family impact of ADHD and by giving practical advice and
support, will help to take the pressure off some of the day's stress
points."
References
1. IPSOS Health, ADHD Survey 2004: UK. July 2004
2. Adelphi Research UK. Family Stress Points ADHD Research. June
2004
3. American Psychiatric Association. DSM-IV Text Revision. 2000:
85-93
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